Et les maladies rares dans tout ça?

Tristan

juil. 25, 2025

And what about rare diseases?

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2 Commentaires

Bro Saeed

Jul 29

I'm sorry to hear that.

Sephience is yet the next treatment to run that gauntlet. Hoping for good things.

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Tristan

Jul 31

I hope that it will be easier to get access to this treatment than it is for Palynziq. Fingers crossed.

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Carnet Phénylcétonurie | Phenylketonuria Notebook

Et les maladies rares dans tout ça?